Living with black lung disease is hard on patients and their families. Not being able to breath or do simple tasks saps the energy of former miners, and the treatment is time consuming and expensive. The social distancing with COVID-19, and its potential to compromise the respiratory system, makes living with black lung that much harder.
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Jerry Coleman, a third-generation coal miner, worked for 37 years, mostly underground, near Cabin Creek, West Virginia. But at 68 years old, he has complicated black lung disease, meaning, his lungs are permanently and irreversibly scarred by coal dust.
“Black lung, it doesn’t get better, it gets worse,” Coleman said.
Black lung is in a way, a death sentence — the lungs gradually deteriorate until the person can no longer breathe.
And in the middle of a pandemic, it is only more complicated, Coleman said. He is also the president for the Kanawha County Black Lung Association.
“You gotta wear a mask, and with your breathin’ problems and stuff, it’s hard to walk around and breath through the mask. It’s like sucking in hot air,” he said. “But I don’t have no choice, with the condition of my lungs and stuff, I can’t take a chance.”
COVID-19 is classified as a respiratory virus. It can affect and even be deadly to the healthiest of people, but the most vulnerable are those with high-risk conditions, such as lung disease and old age — which represent much of West Virginia’s former coal miner population.
“Each different lung disease kind of takes away some of your lung function,” said Carl Werntz, an occupational medical specialist in southern West Virginia.
Werntz administers black lung exams, a crucial step to apply for federal black lung benefits.
“So that person if they get COVID it bothers their lungs,” he said. “They’re going to run out of usable lung much faster than somebody who starts out with healthy lungs.”
Lung Exams Put on Hold
Since the pandemic began, Werntz said black lung exams were put on hold at the clinic he works at in Cabin Creek. Exams slowly resumed in July, but at half capacity.
Typically, he sees six to eight patients a day, but with new COVID protocols, Werntz said he sees three to four — creating a backlog of patients waiting for their black lung exam.
“The longer you wait to do the testing to show that they really have the disease, the longer it is until they can get the benefits, including, you know, potentially medical care if they don’t have some other way to pay for their breathing care,” Werntz said.
Federal black lung benefits include monthly payments and medical coverage for lung treatment – medical care that is expensive, said Jerry Coleman, the former coal miner with black lung.
The fight for benefits can be long even without a pandemic. Coleman said he fought for seven years to receive his benefits.
“Until you get awarded it, anything that pertains to you breathing, you have to pay for everything,” he said. “And you’re not going to, you know, spend exactly what you have to spend, because you don’t have the money to waste. You know? It’s a shame to say but that’s the way it is.”
With COVID severely limiting the number of patients who can come in for their black lung exams, the wait to get benefits keeps growing for some miners.
Black Lung Benefits Could Dry Up
Mickey Pettry, who is 63 years old, worked in the coal mines much of his life. Although his personal doctors have diagnosed him with black lung, he has fought in the courts for his federal benefits for three years, and he fears the pandemic will only draw out this process.
“But the entire focus is on the battle going on up in DC. So, there’s very little attention being paid to anything else,” Pettry said.
In fact, the coal excise tax, which is the primary money for the Black Lung Disability Trust Fund, is set to expire at the end of this year. This means funds for black lung benefits could dry up quickly.
This issue is a priority for black lung advocacy associations, said Coleman. He and other members from local associations went to Washington D.C. last year and helped secure the funding through 2020. But with COVID, Coleman said it is harder for the associations to hold meetings and to advocate for the renewal of the legislation.
“Because our voice is what’s gotta be heard, you know,” Coleman said. “If we don’t speak out, it’s gonna be forgotten.”
High Risk for COVID
In the meantime, things are a lot less social for those with black lung disease. Coleman said he has spent most of his spring and summer at home, trying to social distance.
Pettry added that not being able to go to the monthly black lung association meetings takes a mental toll. Many of the members are his neighbors, friends or former coworkers. There is a therapeutic aspect.
But now, even going to the store is a risk Pettry said.
“I don’t have a lot of tolerance for people now. There’s so many people that think wearing a mask is a joke. It’s highly, highly stressful,” Pettry said. “People have a right to their opinion, but we can’t afford to say that it’s not real. When they infringe upon our protection, you know I get really upset.”
Pettry does not know what the future holds for him as someone with black lung disease during a pandemic, but he said he is making do with what he has — mowing the lawn, grilling meat on his back porch and occasionally putting on a mask and getting a hot chicken sandwich from Chick-fil-A.
Appalachia Health News is a project of West Virginia Public Broadcasting, with support from Marshall Health and Charleston Area Medical Center.
This story is part of West Virginia Public Broadcasting’s Southern Coalfields Reporting Project which is supported by a grant from the National Coal Heritage Area Authority.